Delayed

Sierra was scheduled for Methotrexate on Wed. All of my facebook friends know that didn't happen, but I figured those who aren't on facebook may think we were in the hospital the last few days, Nope! When we went in to see the doctor on Wednesday, he decided that she needed another week to let her little mouth heal a bit more. The Methotrexate is known for causing mouth sores and he didn't want to pile new ones on top of old ones. Though it is nice to have this week with Sierra feeling almost good as new, we were hoping to avoid any delays with treatment. Not to mention that now she will be in the hospital during the last days of school and have to miss out on field day(I haven't bothered even telling her about field day, so she wont even  miss it, but I will miss it for her).
She is still on IV nutrition, but she was on it for 24hrs before and they have reduced it to 14hrs, so now she is tube free during waking hours for the most part. it is so much easier for her to get around and play. I definitely think I will be ready for my nursing degree after all of this is said and done, I am learning a lot.
David took Sierra to school yesterday, she was able to stay all day, and have Movie day with her class. She loved having daddy there with her and asked him to take her again on Tuesday next week. She was also able to participate in a filed trip for school on Thursday. We meet her class in town where they visited several locations, we only went to the library and bank with them and then had a picnic lunch at the park, but she was happy to be included and to see all of her friends after about 3 weeks of missing school.
I know I have mentioned our surgery options once before,and wanted to post about our final decision and a bit about our plans over the next month or so. Sierra will be having a rotationplasty surgery, essentially the knee portion of her leg will be removed, and the lower leg will be rotated 180 degrees and reattached so that her ankle will serve as her knee. Aesthetically she will look different, but functionally she will be able to do everything a little girl should be allowed to do. While this option isn't perfect(none of them are really great)we know this is best for Sierra. She is a bit concerned about how it will look, but we have tried to help her know that the way it looks isn't important, and that she will be able to do all of the things she wants to do once she is healed. Anyone who sees her and talks with her about it, please be considerate and encouraging to her, let her know we all love her no matter what and will support her. She is going to need a lot of people making her feel extra special until she is able to own this newness for herself.
For the surgery we will be travelling to Denver, this will be a scary and exciting trip in one. Sierra has never flown and is looking forward to it, but we are sad to have to leave Reece and Evelyn behind. Lucky for us that the surgeon doing the surgery works in Denver because we have a lot of family in Colorado, so we will have support in the hospital, where others in this situation may not. We are excited to be able to see some family that we haven;t seen in a long time, and probably some that Sierra and I have never met.
We will be going back to the hospital on Wednesday for her next treatment and then the following week for another, then she will be done with chemo until after she heals from surgery. Please keep her in your prayers, that she will be strong for these next 2 chemo treatments, that she will handle the surgery, that her pain will be manged well, and that the chemo has done it's job on the tumor(we aim for over 95% tumor necrosis to know the chemo is doing it's job).

A couple of baldies:)